I blamed my back pain on a mattress but I’m riddled with agonising tumours that have collapsed my spine

I blamed my back pain on a mattress but I’m riddled with agonising tumours that have collapsed my spine

Life can throw curveballs, and sometimes, what seems like a typical ache can be a sign of something far more serious. Terry Harper, a 62-year-old bus driver from London, experienced this firsthand when the back pain he initially attributed to everyday strain turned out to be something drastically different.

Terry's story began with what he thought was a common back issue. He chalked it up to the physical demands of past demolition work and even the recent task of carrying a mattress upstairs. However, this seemingly ordinary discomfort was, in reality, a symptom of a hidden and aggressive disease lurking within his body.

Initially, Terry sought medical advice and was diagnosed with slipped discs by his general practitioner. He was assured that the pain would subside within a few weeks. Unfortunately, the situation took a turn for the worse, leaving Terry in excruciating pain and severely limited in his mobility.

Photo of Terry Harper and his partner Gella.

The pain became so debilitating that Terry was unable to perform basic daily tasks. He couldn't eat, use the restroom, or even get out of bed. His partner recognized the severity of his condition and called for an ambulance. However, the first responders initially deemed his condition not critical enough, highlighting the challenges in recognizing and responding to subtle yet serious medical emergencies.

Two days later, with Terry's condition rapidly deteriorating, his partner called the ambulance again, emphasizing that he appeared to be dying. This time, the urgency was recognized, and Terry was rushed to the hospital, where he underwent a series of tests that would ultimately reveal the true nature of his ailment.

The diagnosis was devastating: stage-three cancer. Further investigation through a CT scan revealed the presence of twelve tumors along his spine, along with myeloma, a type of blood cancer that affects the bones. This news came as a complete shock to Terry, who described it as feeling like he had been "hit by a bus."

Man in hospital gown lying in a hospital bed.

Myeloma, while being the third most common type of blood cancer, often goes undetected due to its symptoms being easily mistaken for general signs of aging or minor ailments. This makes early detection challenging, emphasizing the importance of being vigilant about persistent and unexplained pain.

Terry underwent chemotherapy, and in December 2024, his cancer went into remission. However, the relief was temporary, as the cancer returned in June of the following year. He began experiencing cramps throughout the night and developed a growth in his right eye, requiring further investigation.

Currently, Terry is undergoing a rigorous treatment plan that includes 36 weeks of chemotherapy and two years of injection chemotherapy. Myeloma, unfortunately, is an incurable blood cancer. However, it is treatable in many cases, allowing for periods of remission, although the cancer will inevitably return. Understanding the nuances of such chronic illnesses is key to managing expectations and treatment plans.

Man using a walking frame.

The impact of the disease has been profound, causing Terry's back to be ravaged and significantly altering his physique. He has lost four and a half inches in height due to the collapse of the discs in his back, leading to constant and debilitating pain. He poignantly states, "Being hit by a bus would be easier," illustrating the intensity of his suffering.

The physical toll is immense, but Terry also faces emotional and financial challenges. He describes the diagnosis process as a "horrible situation" that he wouldn't wish on anyone. He hates the word "cancer" and refers to it as "the C word," reflecting the fear and negativity associated with the disease.

Despite being advised to rest during his battle with cancer, Terry continues to work reduced hours to make ends meet. The financial strain has become a significant burden, as he technically should be resting but cannot afford to do so.

A grandfather holding his granddaughter on his lap outdoors.

To alleviate some of this financial pressure, a fundraising campaign has been established to support Terry. This highlights the importance of community support in helping individuals and families cope with the challenges of serious illnesses.

His story underscores the importance of being aware of potential warning signs and seeking prompt medical attention when experiencing persistent or unexplained pain. Common symptoms of myeloma include:

  • Persistent or unexplained pain for more than four to six weeks, particularly in the back or ribs
  • Tiredness that doesn't improve with rest (fatigue)
  • Easily broken bones or unexpected fractures
  • Experiencing either frequent urination or minimal to no urination
  • Nosebleeds or unexplained bleeding or bruising
Back pain, while often benign, can sometimes be a symptom of a more serious underlying condition. Medical professionals advise that it's crucial to seek urgent medical attention if back pain is accompanied by a high temperature, unexplained weight loss, a lump or swelling in the back, or a change in the shape of the back.

Additionally, if the pain doesn't improve after resting, is worse at night, or is exacerbated by sneezing, coughing, or bowel movements, it's essential to consult a healthcare provider promptly. Pain originating from the upper back (between the shoulders) rather than the lower back also warrants urgent medical evaluation.

A man with his two daughters at a baby shower.

The location of back pain can provide clues about its potential causes. For instance, pain in the sides may indicate kidney problems, pancreatitis, bowel inflammation, or womb contraction. Spinal pain could be associated with degenerative disc disease, spinal stenosis, or arthritis. Lower back pain is commonly linked to muscle injuries, spasms, or herniated discs, while upper back pain may result from pinched nerves. Neck pain can stem from misalignment or low flexibility.

Terry's experience serves as a poignant reminder that what seems like an ordinary ailment can sometimes mask a more serious underlying condition. By being vigilant about our health, seeking prompt medical attention, and fostering community support, we can better navigate the challenges that life throws our way.

His story encourages us to be proactive in our healthcare and to listen to our bodies. It also highlights the critical role of early detection and the importance of comprehensive medical evaluations when symptoms persist or worsen.

Terry's journey is a testament to his resilience and determination in the face of adversity. While the road ahead may be challenging, his story inspires hope and underscores the importance of perseverance and support in battling serious illnesses.

In the end, Terry's story is a powerful reminder that life is precious and that we must cherish each moment. It urges us to prioritize our health, support those in need, and remain optimistic in the face of adversity.